Hope for Henry - This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.Fanconi Anemia: A Handbook for Families and Their Physicians - Gives basic information in plain language, about understanding and coping with this serious disorder also known as Fanconi's anemia.
Fanconi Anemia Research Fund - To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
Fanconi Anemia: the Frohnmayer Family's Experience - The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness.
Diamond-Blackfan Syndrome - A definition, epidemiology, clinical features, complications, investigations and management.
Fanconi Anemia Fact Sheet - Information on this disease and who is affected.
International Fanconi Anemia Registry - A study being done on patients with fanconi anemia to obtain clinical and genetic information. Genetic counseling and dietary instruction will be provided.
Diamond Blackfan Anemia - Information and support for patients and families with this type of anemia in the United Kingdom; Details on research, treatments and charitable aims of the group.
Diamond Blackfan Anemia - Also known as hypoplastic anemia and pure red cell aplasia. Information and support for patients and families; DBA registry; donations to further research; and fund-raising.
Fanconi Canada - Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
Fanconi Anaemia - A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases - Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
Fanconi Anemia Fact Sheet - University of Pittsburgh - Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of Human Genetics, including links to support and diagnosis resources.
Fanconi Anaemia - A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
B Positive, Inc. - A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
Alex and Matt Pearl - Personal stories of two children fighting Fanconi Anemia.
Fanconi Anemia Web - An informational site for this disorder.