Andy - Describes the health condition of ANDY who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.

National Foundation for Ectodermal Dysplasia - ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.

The Ectodermal Dysplasia Mailing List - Includes instructions on joining the list, FAQs and links to further resources.

Ectodermal Dysplasia Society - Information about the organization as well as the ED condition. Includes links, news articles and contact details.

NORD - Hypohidrotic Ectodermal Dysplasia - Offers synonyms, a general discussion and resources.