Stephie's Corner - A mother's journal of her daughter's life with Sturge - Weber syndrome. The site highlights the personal aspects of the syndrome and how it affects daily life.The Sturge-Weber Foundation - A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
NORD - Sturge Weber Syndrome - Offers a list of synonyms, a general discussion and further resources.
Pediatric Database - A definition of Sturge-Weber syndrome, the epidemiology, pathogenesis, pathology, clinical features, investigations and management.